A schedule for the weekend!?! What's up with that!! The program believes that the kids need to follow a schedule for the first 6 months after their pain goes away. Retraining Payton's brian is going to help all of us get our lives in order!!
Yes, that is what we are learning here. Payton's nerve amplification/central sensitization syndrome has caused her brain to send signals to her nerves telling them they are in pain even when they are not. And the nerves in her back and feet were constantly in pain.
Already in 3 days, Payton has learned how to control the pain and we are going from 8 am until 8 pm- without much pain!! Please pray that she is able to control it forever!! They have told us it is like a roller coaster for most kids. They are on a high when they start, experience a fall and then level out so when they leave, they have the tools.
We are going to relax, deep breathe and go to bed so we can follow our schedule tomorrow!